Monthly Archives: April 2012
Colin is not feeling much better. He had some lab work done last week that showed his amylase slightly elevated. What does that mean? Does that mean nothing, or does it mean that his amylase was higher and coming down? Or does it mean that it was on its way up? He seems to have a little more energy but is still obviously uncomfortable, and is still not eating much. He had lost 4 pounds as of last week. At this point we really don’t know what is going on, but we know that something is not right.
As far as the funding battle goes, we are not giving up. We are considering bringing suit against the Department of Mental Health, but we are still thinking whether that will be worth our while. The basis of our suit would be that we contend that the DMH can not discriminate against Colin’s Castle, Inc., since there is one other Microboard in the state that is receiving funding.
Right now we are limping along with what money we do get, heavily subsidized by me of course. We do have a pretty good day program going for Colin though, as our Aides Keith and Perry spend a lot of time with him. Keith especially spends time doing chores, having Colin work on sight reading, counting money, and personal hygiene.
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About a month ago I wrote that we had heard from the DMH Commissioner regarding funding our Microboard. The news was not good, and her letter to me was quite confusing and incoherent at times. In that letter she suggested that we meet with the people at the Regional office of the DMH here in Birmingham. Today, we did meet with her people who were quite uncomfortable meeting with us. They had received no direction or guidance from DMH nor the Commissioner herself, and didn’t really know what to tell us. They were very sympathetic to our cause and were obviously uncomfortable meeting with us, almost as if they thought that the Commissioner had gaffed us off onto them.
Also, we are fearing that Colin is again afflicted with pancreatitis. He is not eating and is not acting himself. It is very difficult to extract any information from him about how he feels, or what hurts. Tomorrow he has a Dr’s appt. and we will ask to have his amylase checked. We would appreciate prayers for Colin.
Keep the faith.Read More